Searchable abstracts of presentations at key conferences in endocrinology

Endocrine Abstracts

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ea0037gp.28.06 | Endocrine tumours and neoplasia – NETS | ECE2015

Patient-reported time to diagnosis of neuroendocrine tumors (NETs) in Europe: results from the first global NET patient survey: a collaboration between the International Neuroendocrine Cancer Alliance (INCA) and Novartis

Pavel Marianne , Kolarova Teodora , Goldstein Grace , Leyden John , Sissons Maia

Background: Neuroendocrine tumor (NET) symptoms are often similar to common conditions or may not arise until metastasis occurs, delaying diagnosis and impacting survival. We present data on time to diagnosis from the European (EU) NET patient perspective.Methods: In 2014, 1928 NET patients from >12 countries (Europe (n=763): Belgium, Bulgaria, France, Germany, Norway, UK, and other EU countries (not specified); Americas; Asia; Oceania) part...
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ea0037ep1139 | Endocrine tumours | ECE2015

Neuroendocrine tumor European patient experience: results from the first global NET patient survey – a collaboration between the International Neuroendocrine Cancer Alliance and Novartis

Oberg Kjell , Leyden John , Goldstein Grace , Sissons Maia , Kolarova Teodora

Background: NETs are a rare heterogeneous group of malignancies, often with a delayed diagnosis. Although diagnosis of NETs is increasing (due in part to greater awareness), little has been published on the NET patient experience. We present data on the EU NET patient perspective.Methods: In 2014, 1928 NET patients from >12 countries, including EU (n=763: Belgium, Bulgaria, France, Germany, Norway, UK, other EU countries (not specified by re...
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ea0072p2 | (1) | UKINETS2020

Survey of challenges in access to diagnostics and treatment for neuroendocrine tumor (NET) patients (SCAN) – UK and Ireland vs global diagnosis of NETs

Bouvier Catherine , McDonnell Mark , Rodien-Louw Christine , Genechten Dirk Van , Leyden Simone , Gellerman Elyse , Dureja Sugandha , Kolarova Teodora

Background: Neuroendocrine tumors are uncommon and complex neoplasms with increasing incidence and prevalence worldwide. SCAN assessed global delivery of healthcare to NET patients.Methods: During Sept-Nov 2019, 2359 NET patients/carers and 436 healthcare professionals (HCPs) from 68 countries completed an online survey, available in 14 languages.Results: 12% NET patients/carers were from United Kingdom (UK) [279/2359], 5% from Ire...
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Published by BioScientifica

Endocrine Abstracts
ISSN 1470-3947 (print) | ISSN 1479-6848 (online)
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